I thought I better post up an update as I haven't posted for a while. The main reason I haven't posted for a while is that I couldn't get any consistency with my health but I feel that perhaps going forward I may be able to.
About a month ago I set myself off again when I started eating fruit, examples of the fruit that I was eating included grapes, blueberry jam, apples and watermelon. I've known for a long time that I have a problem with sugar but every so often I try fruit again (because it is natural). I'm not very good with moderation, I often go overboard when I start eating a food group again.
My wife has previously mentioned Fructose Malabsorption before but I didn't think it was that relevant because I didn't eat much sugar anyway. I did some more research and it does look to be the factor that is setting me off. I've been eating a fructose malabsorption diet for the past couple of weeks and is going very well. There was one blip along the way when I started eating oat bran again and it clogged me up.
I was hoping that I didn't have Pyroluria and only a Fructose Malabsorption issue (Fructose Malabsorption is very well known and main stream, whereas Pyroluria is not) but I have tried reducing my supplements twice now and both times I felt like crap until I increased my dosages again. There is still a tiny amount of hope though that I might only have a single condition, as can take up to 6 weeks on the Fructose Malabsorption diet before the full health result appears.
I feel this realisation could be very relevant to people suffering from Pyroluria or Blastocystis Hominis, so it was important for me to post it up.
I have actually taken it a bit further than just restricting Fructose and I am following a low FODMAP diet. You can search for low FODMAP information via google but I am using an iPad app for it, which is published by Monash University in Australia (where they specifically test each item). The app costs about $10 but it works really well, it's actually designed for iPhone but when blown up on the iPad it looks fine and works well.
It's a weird diet, gluten free, dairy free but not necassarily sugar free – some fruits are alright, some forms of sugar are alright, some vegetables also need to be avoided. It's actually a much more broad range of foods than I was eating. I've even been making blueberry muffins with gluten free flour and glucose as the sweetener.
I'm going to get tested next year for the specific items that are FODMAPS, it's just a breath test after a fructose and other FODMAP challenge.
My digestion hasn't worked this well for a long period of time…but I don't want to get my hopes up just yet. I'll keep you posted.