Yep, it turns out Carnitine deficiency is not my underlying issue, it took a week or so but after reducing my zinc and vitamin B6/P5P considerably because I was thinking/hoping perhaps all I needed was the Carnitine – I went downhill again.
For about 3 weeks I felt superb though when I was taking both the carnitine and my Pyroluria supplements. I’m currently building…building…building with increased doses of zinc/b6/P5P and I feel I have a pretty good point to aim for with these supplements. I’m still sticking to a low FODMAPS diet, not sure if I mentioned before but my wife makes a pretty nice gluten free/glucose sweetened muffin, so really enjoying those. I’m also doing a lot of walking again, as it has always seemed to help, particularly when I go first thing in the morning.
I did get tested for Carnitine deficiency (blood test) but I’m still waiting on those results. I will post about the result when I get them back.
There have been a few comments lately and thank you for those. Have been rather slack at responding, my interest in blogging seems to go up and down a fair bit depending on how I am feeling. My interests/hobbies tend to jump around a lot depending on how I am feeling actually, kind of fun in some ways as I am always getting new things to focus on but also kind of annoying in other ways as I don’t have a lot stickability in my interests.
Perhaps I shouldn’t have changed my blog name from PyroluriaLife as I still suffer from Pyroluria, but I do like the new title as working my way to health is quite a journey.
Anyway, feeling reasonably motivated to write today, so may respond to some comments. Hope your health journey is going well.